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reflection |
day in the life
Highlighting
the everyday life of a couple living well with a slow-growing cancer.
Life isn’t
always easy, and there will certainly be sorrows and losses
along the way. But being alive is good. It is very good.
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Sunday, April 26, 2009
Flat Stanley in
Ory-gun
Flat Stanley arrived in town from New Jersey yesterday and,
being the good hosts that we are, we immediately wore him out
with hiking and rock-climbing.
Today was a slower day of sight-seeing – we took him to
downtown Bend and Mirror Pond (see photo below with Middle
and South Sister looming in the distance), and we showed him
the historic Pine Tavern, established in 1936 with its
250-year-old Ponderosa Pine growing through the restaurant roof.
Flat Stanley was pretty amazed!
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When Flat Stanley first arrived, he wasn’t properly attired
for the rugged Pacific Northwest—being a city boy
from Jersey—so we purchased hiking boots, a hat and
vest, and binoculars for him.
I think he’s having such a good time that he won’t want to
go home, but on Friday we’ll board a plane together
and I will hand-deliver him to our 8-year-old
granddaughter, Lilly, who will then take him to
school and share his Oregon adventures with her
classmates, complete with photos and maps.
And then I’m sure that Lilly’s teacher, Miss Foley, and the
entire second grade class of Ben Franklin Elementary in
New Jersey will immediately pack their bags for a trip to
Ory-gun!
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Monday, April 20, 2009
Baby steps
We’re driving home over the Cascades on a glorious spring
day with the news that Gary’s PSA count took a downward turn.
Our next appointment at the Oregon Urology Institute is in four
months, so … a respite of not having to think about what ifs.
We did some brainstorming on the road, and completed a
couple of homework assignments, including drafting a list of
accomplishments requested by our CPA for the filing of our
non-profit annual report to the IRS. The non-profit was
established at the end of 2008 so our list is short, but it was
encouraging to write it out:
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Created Cancer Adventures Web site
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Developed a tag-team presentation; conducted speaking
engagements
at
cancer centers and hospitals
across Oregon and into Idaho
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Published the book, Cancer Adventures: Turning loss into
triumph
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Developed a “Call to Action” hand-out for our presentation
audience
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Board of Directors in place
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Began researching for grants while waiting for IRS approval
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Began scheduling 2009 speaking engagements
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We left Tacoma this morning after a weekend with my mom and
older brother—catching some rays in the beautiful
Tacoma/Seattle area, and helping Mom pack in
anticipation of moving to Florida.
Photo at left was taken
while on a leisurely stroll along the Puget Sound at Point
Defiance followed by lunch at Anthony’s overlooking
a snow-covered Mount Rainier. It was a really good
weekend of
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with
family and accomplishing things that needed to get done (how
difficult must it be to have to part with the things that make
up the memories of your life?).
So, downward PSA counts (a special thank-you to all who
have been praying), time with family, lists of accomplishments.
We are taking baby steps, and even though I want to take a giant
step and quit my day job tomorrow so we can put full-time effort
into our mission and see our family as often as possible, I will
content myself with baby steps ... because these baby steps are
headed in the right direction.
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Friday, April 17, 2009
Four-day weekend
It’s 7:30am and I’m still in my
pajamas - yahoo! (Normally would be sitting at my desk in Cancer
Services at St. Charles.) I have the day off since I’ve already
put in 40 hours this week. Tuesday evening was our monthly
DEFEAT Cancer
meeting with a terrific group of thriving
cancer survivors, enjoying a nutritious soup and salad bar and
an inspirational guest speaker.
Wednesday evening was the
Wendy’s Wish
committee meeting. This dedicated team led
by Al Huntley has reached its endowed amount and now is
beginning to see the fruits of their labors. I was pleased to
give the monthly report that Cancer Services has assisted 11
patients representing 9 different types of cancer with
non-medical living expenses ... all because of their hard work
and big-hearted efforts.
And then last night Gary and I hung
out at the Foot Zone in downtown Bend, helping people with
online registration for the upcoming
Heaven Can Wait
5K Walk/Run for breast cancer. Foot Zone
hosted the evening event in celebration of the 10th
anniversary of HCW, now Bend’s largest athletic event with 3,400
participants in 2008 (between 350 and 400 of them cancer
survivors).
We’re leaving early tomorrow morning for Tacoma, WA,
to visit with my mom and older brother. On Monday, we’ll swing
by Springfield, OR, for Gary’s appointment with the good Dr. E
where we’ll learn if the ketoconazole has brought Gary's PSA
count down.
I don’t like living from PSA count to PSA count because the
numbers dictate the direction our journey will take. But when
you really think about it, it’s God who dictates our journey’s
direction and we firmly suspect it will be an exciting,
adventurous one.
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Meanwhile, today I’ll do some follow-up calls to the East
Coast – we’ll be there for a week at the end of June
and have connected with a handful of cancer centers
and organizations in the area. I’ll begin writing a
new grant that Gary recently found online (he’s
always finding extra work for me to do … sigh). And
I’ll get some laundry and packing done, may even try
a new granola bar recipe. |
Diligently pursuing grant-writing
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Sometime today I’ll need to walk over for a few groceries
and a Chai tea. (A girl can only sit at her computer for so long
before turning a glowing shade of blue, but nothing that a Chai
tea can’t fix.)
Here’s to 4-day weekends. May there be many, many more!
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Sunday, April 12, 2009
Soaring on wings
Last month I wrote a blog about Gary being videotaped for a
sermon series entitled “Live Like You Were Dying.” Gary was
pretty nervous about seeing himself on the big screen at this
weekend’s Easter services, but he didn’t need to be.
The piece was done nicely and included two other people – a
woman whose mother, sister and close friend all recently died;
and a young woman who tried to take her own life. It ended with
these words from Gary: “Cancer has caused me to re-prioritize my
life and to try and figure out what God wants me to do with the
time I have left.”
So, with the time we have left together, we are on a cancer
mission – to share our proactive survivorship message and to
encourage others that are facing life’s challenges to rise above
them and look for ways to give back within their communities.
A few weeks ago, we were approved to submit a Letter of
Inquiry to a foundation based in Florida – one of those
organizations where you can’t apply for a grant without an
invitation. (Our connection was the wife of one of our Board
members who went to bat on our behalf.)
I received a call earlier this week from the president of
the foundation – “You’ve been selected … we’re mailing a check.”
For $20,000. I think she was quite impressed with my calm,
professional response: “Oh my goodness! Are you serious?! That’s
awesome! Woo-hoo!” I exclaimed in high decibels.
And so now we have a new challenge, and one that we relish:
that of traveling to a number of communities across the country
with our message (the easy, fun piece) balanced with coming back
to the work piled up on our "day job" desks (the challenging
piece).
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We recognize that all the open doors and provision and
connections are God's way of choreographing our
dance. We also recognize that it will take more
divine intervention for us to move forward and
handle the stress that comes from having to maintain
our everyday jobs and soar on wings as eagles toward
the vision.
And we do intend to soar. |
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Sunday, April 5, 2009
Sunbathing Central Oregon
style
While our son wrote that they were celebrating the advent of
spring in Phoenix
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with a Diamondbacks opener ... and our daughter posted photos of
her family vacationing on North Carolina's Outer Banks in
70-degree temperatures, Gary and I strapped on our snowshoes to
do some sunbathing of our own - Central Oregon style.
Arizona and the
Atlantic shore ain't got nothing on Central Oregon!
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Saturday, April 4, 2009
Real men wear pink
Four cowboys and a cowgirl stopped by with a sizeable check from
their “Tough Enough to Wear Pink” campaign at the Columbia Pro
Rodeo Circuit Finals last fall. (“Tough Enough to Wear Pink” is
the
western industry’s effort to raise money in support of breast
cancer research, awareness, education and screenings.)
I get frequent calls from the public: “Our business (church
group, golf club, builder’s association) raised this money for
cancer and we’re not sure what to do with it.” I always suggest
a photo op—“Would you like to come by the Cancer Treatment
Center and meet Peggy Carey, Director of Cancer
Programs?"—because it’s so much fun to put a face to the names
of these wonderful people.
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My boss, Peggy, wearing red in photo at left, is a horse woman
herself. The pink western shirt was signed by the
cowboys and cowgirls at the 2007 circuit finals and
has been proudly displayed in the Cancer Treatment
Center ever since. It’s actually a great
conversation piece – folks can never figure out why
there’s a pink shirt hanging on an easel covered
with signatures!
Cute, young, single Janette from our Marketing Dept was on hand
to flirt with the 6’4”, 200-lb. steer wrestler.
“Wow, is that where you jump off your horse and rope
the steer’s legs?” “Does it hurt the cow?” “Do you
lift weights?” asked our own cute, young, single
Janette. The big cowboy loved the questions and
politely explained the difference between calf
roping and steer wrestling. (Janette emailed me
later: “I am totally going to the rodeo this
summer.”) |
I’ve often wondered if Central Oregon has more than your average
share of big-hearted people. I tend to think the answer is yes.
And we met five of them this past week, bearing gifts and
wearing cowboy hats.
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Thursday, April 2, 2009
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Fun in the CTC
There is no end to the laughter in the Cancer Treatment Center.
Yesterday one of the patients came in with her
cockapoo. Our head nurse, Cheryl, told the patient
about her cockapoo. Seems that Cheryl had been
wanting a small lap dog and found a cockapoo puppy
in the paper. The owners were a little distance from
Bend, over the mountains and past Diamond Lake.
They
arranged to meet at a roadside area and Cheryl
brought the required |
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$400 in cash. She brought her new puppy to work where co-workers
told her they didn’t think it looked much like a cockapoo. The
puppy had huge paws that it grew into, and more and more people
told her they didn’t think it was a cockapoo. Cheryl tried
calling the original owners but their phone was no longer in
service.
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Nevertheless, Cheryl’s family fell in love with the lap dog that
kept growing and now weighs more than 100 lbs. They
suspect it’s a cross between a Rottweiler and a
shepherd.
When our new patient first showed up with her cockapoo, Julie,
one of the schedulers, called Cheryl from the front
desk: “Hey Cheryl, do you want to see what a
cockapoo really looks like?!”
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It was this same Julie who handed me a note yesterday with a
man’s name and phone number. “This guy called and wants you to
call him back.” I took the paper and didn’t recognize the name.
“Did he say what he wanted?” “Nope, just that he wanted you to
call him as soon as possible.”
I dialed the number and got a recording for the High Desert
Museum. We are in the middle of collecting sponsorships for an
upcoming 5K walk/run for breast cancer; perhaps they wanted to
donate. The recording instructed me to key in the first three
letters of the person’s name. I punched in the letters for “Bob”
but the only Bob listed was someone with a different last name.
There was the option to leave a message, which I didn’t want to
do, so I punched a few more buttons until I got a live person.
“Yes, this is Marlys Johnson calling from St. Charles Cancer
Treatment Center and I have a message to return a Mr. Bob Katt’s
phone call. Is there someone there by that name?”
The guy paused for a second before he said, “No … but have you
stopped to think what today is?” April Fools Day. And then I got
it – Mr. Bobcat at the High Desert Museum wanted me to return
his call! I threw my head back and laughed … and this guy
laughed right along with me.
It doesn’t take long for things to get around the CTC. All day
today people asked me, “Hey, did Mr. Bob Katt return your call
today?”
Very funny.
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March 2009
Live like you were dying
Day jobs
Connected
CAN Cancer
The power of one
February 2009
It's official
Fun with the medical professionals
To my valentine
Moments in Jersey
January 2009
Leaving on a
jet plane
Scans ordered
Welcome to life
Insane residents
Back in high school
Engaged crowd
Out of the mouths of babes
Divine intervention
December 2008
Christmas
via webcam
A merry little
Christmas
Somewhere on purpose
Adventure and
romance
Celebrate life
Imagine
Men and menopause
November 2008
My Thanksgiving list
Thanksgiving
Eve
Roundabouts
How Starbucks
saved my life
Training for
Switzerland
Radio interview
Super colon
Thoughts on
being invisible
The speed of a turtle
October 2008
Obligation of
the cured
Cancer Adventures – the book
Blue and orange town
Hope Couture
First snow
Simple
pleasures are the best
128 quilts
September 2008
Whale watching
and kite flying
The new and relaxed Gary
The scenic
route
Packing the essentials
One step at a
time
PSA count celebration
August 2008
Frost in August
Reading list
Soaring Spirits
Checking in
9:30am rock band
Lingering
July 2008
Grand for a reason
Mickey Mouse
pancakes
Survivorship is all the rage
Follow your dreams
Birthday weekend
Only in America
Unrelated goose incident
June 2008
Geese
Road trip
Friday night date
Tough day on the job
Best dad
Confession
Light bulb moment
Homesick
Amazing volunteers
May
2008
Countdown
Extended family
Testing the limits
Trailblazers
The last lecture
Mother’s Day thoughts
Welcome to our world, Lydia
Personal touch
April 2008
Dispensing goodness
Cancer community – Part II
Cancer community
Barn
door analogies
Homemade soup day
Mice and tumors
Waiting room magazines
Weekend date
First entry
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