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a day in the life

The purpose of this blog is to highlight the everyday life of a family going through cancer. We're aware that every diagnosis carries a different challenge and that we can only share our perspective on what it's like to live with a slow-growing cancer that has metastasized. Our hope is that you'll come back to visit often!


 

Wednesday, April 28, 2010

Technology and pedicures

Ever wonder about the days when married kids packed up their households and their children and rolled west in covered wagons, perhaps never to see their parents again ... grandparents never to see their grandkids again.

Three years ago, our son-in-law packed up his household and headed east in a covered U-Haul. He took our daughter and grandkids with him. Without our permission.

Fortunately, there are cell phones and jet planes and Web options that our forefathers and mothers didn’t have.

For example, our almost-two-year-old granddaughter—born in Jersey after her family emigrated there—finds her big sister’s orange nail polish and gives herself a pedicure.

       

Toddler-designed pedicure

 
        

And then, not too long afterward, same almost-two-year-old masters the fine art of tattooing and gives herself a full arm sleeve.

Thanks to amazing technology, our daughter snaps a digital photo, probably using—get  this—not a camera, but a phone … and posts it to Facebook.

Technology. How else would we keep up with the antics of a toddler halfway around the world?!

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Full arm sleeve tattoo

 


 

Sunday, April 25, 2010

Idaho ranch hands

Ever pay big bucks to go to one of those working dude ranches? We haven’t either, but yesterday we  visited an Idaho ranch and had to work for our supper. I’m thinking we ought to be billed for the sheer pleasure of the experience (not to mention my sis-in-law’s cooking).

Gary and I spoke on Wednesday at an event in Boise sponsored by the Leukemia & Lymphoma Society, and then stayed over to spend some time with family.

Based out of my mom-in-law’s place, we spent a day at Gary’s oldest brother’s ranch in the high green hills north of Boise. One of my favorite things to do is ride the perimeter of the ranch, which takes a good hour in the back of an old Jeep.

Where the deer and the antelope play

 

This time we took the 4-wheelers. I laughed out loud more than once from the joy of being alive and being outdoors, flying along with the wind, hanging on to Gary for dear life – snow on the distant mountains, wildflowers poking up through the green grasses, deer running in packs, getting splattered by mud and enjoying every minute of it.

   

Ridin the range

 

 

        

We stopped at a spot where Gary’s brother had been trying to find a leak in one of the lines that waters the cattle. He dug several holes along where the line was buried.

My job—because I accidentally mentioned that I have good hearing—was to stick my head down into each of the holes and listen for the sound of water running through the pipe.

 

 

Ranchland plumbers

 

I’m pleased to announce that through the combined genius of the four of us, we were able to pinpoint the general location of the leak, which means Gary’s brother will fire up the heavy equipment and dig even bigger holes.

My sister-in-law, at right holding up the shovel (I’m thinking she may have worked for CalTrans in a former life), had put a turkey in the oven to roast slowly, so you can imagine the aroma that greeted us after a hard day riding the trails and working the ranch.

        

 Quite possibly a former CalTrans employee

 

 

    

Quality time with family (including dinner at the ranch of Gary’s younger brother) ... good conversation and much laughter ... delicious food ... time outdoors in the natural beauty and fresh air ... an opportunity to present to a group of people dealing with cancer and the healthcare professionals who serve them – it just doesn’t get much better than this.

 

 

Backyard views from the log cabin

designed by my sister-in-law

 

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Monday, April 19, 2010

Blonde moments

Gary has kept me laughing our entire married life. I love his dry sense of humor. And then there are his blonde moments, some of which are cancer drug-inducedlike when he’s surfing the world wide web and forgets where in the world he’s supposed to be going.

We usually do our grocery shopping tag-team style. Three items is about the most Gary can handle – “Honey, can you get eggs, tortillas and juice … and meet me in produce?

We get home and no juice, but enough milk to last us quite some time. You said, eggs, tortillas and milk, right?

Come to think of it, two items is about the most he can handle.  ;)

      

Enough milk to last some time

 

And then yesterday I misplace my phone. A little embarrassedbecause I give him such a hard time about his memoryI nonchalantly pick up his phone and dial my number.

My phone starts ringing nearby, but it’s nowhere in sight. And then Gary realizes his pocket is ringing. He had my phone stuffed into his pocket. Great hiding place, hon.  

Long before any cancer meds, though, we had weekend company and I threw together a breakfast soufflé – one of those recipes that calls for ham and asparagus and bread cubes layered in a casserole dish soaked in an egg/milk mixture that sets overnight in the refrigerator.

Im headed to the shower Saturday morning and ask Gary if hell bake the soufflé. Thirty minutes later, I walk out of the bedroom to a smoky kitchen that smells like burnt plastic. Gary baked the soufflé, all right, only he forgot to remove the Glad Wrap.

This is the man I married who has kept me laughing for over 36 years! Am I the luckiest girl alive or what?!

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Saturday, April 17, 2010

Being in community

What do pink skirts and skis, chocolate as a healthy choice, and physical activity options have in common? They’re all components of our Central Oregon cancer community.

      Riders for the Cure  

Kelly Harroun - pretty in pink

Riders for the Cure is this fun ski and snowboard event—participants are encouraged to wear pink, in case you hadn’t already figured that out—hosted by Mt. Bachelor to raise awareness and dollars for Sara’s Project, one of our Cancer Care funds.

Kelly Harroun, young adult survivor, braved the trick hill and the “fun box” at this year’s event. The fun box is 6 feet in length without snow covering. The idea is to head downhill to gain momentum, load onto the box and ride its length – jumping off the end.

I don’t make these things up.

Lizzi Katz, my partner in crime in St. Charles Cancer Care, a survivor and snowboarder herself, says Kelly is her hero: “She’s so brave and positive in how she lives her life.”

Lizzi is my hero. I’ve heard her say that “once you’ve faced cancer, there’s little you can’t do.”

And then there’s chocolate as a healthy choice. This past Tuesday, with 82 attendees at our DEFEATcancer meeting in Bend and another 15 or so in Redmond connected via live broadcast, we enjoyed nutritional info about this month’s Harvest 4 Health pick: chocolate!

Carol Schrader, our most excellent nutritionist, arranged for veggie chili with cocoa powder, a chocolate vinaigrette for the salad, and samplings of a dark chocolate brownie sweetened with Fruit Sweet. Healthy eating just doesn’t get much better than this!

As for healthy movement, we’ve been conducting monthly hikes for our survivors and caregivers since 2007. Today for the first time, though, we provided two trail options: the Badlands hike led by fearless leaders Mike Gibson and Jeff Scott ... and, for those not yet ready to take on the wilderness, an in-town hike facilitated by Gary and his trusty sidekick (that would be me).

A total of 19 people participated in today’s two options, followed by lunch at a local restaurant.

 

Gary and 7 lovely ladies on the Larkspur Trail

   
 

I love seeing survivors join community and establish new friendships ... because there is something so encouraging about hanging out with people who are living well with cancer.

Pink skirts and skis, the chocolate/nutrition connection, volunteers like Mike and Jeff, physical activity options – these are just a few of the components that make our Central Oregon cancer community so amazing.

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Wednesday, April 14, 2010

Live strong

      10k Cental Park  

Denise running a 10K in Central Park

Our daughter-in-law, Denise, is running for TEAM LIVESTRONG in the 2010 New York City Marathon. Shes never run a marathon before.

LIVESTRONG team members will ride, run, walk and swim in 21 different athletic events around the globe to raise awareness and funds to fight cancer.

“We are the cyclist facing a long uphill climb in honor of his mother,” their Web page declares.

“We are the runner finishing a first marathon in memory of her brother” … or, in Denise’s case, in honor of her father-in-law.

“We are the cancer survivor crossing a 5K finish line after completing treatment.”

 

Denise’s goal is to raise $3,500 for the Lance Armstrong Foundation … and every little bit helps. Click here to visit her page at the LIVESTRONG Web site.

Live Strong  

If youve never read the Lance Armstrong Foundation Manifesto, it’s pretty compelling. Here’s my favorite part:

We believe in life.
Your life.
We believe in living every minute of it with every ounce of your being.

If theres one thing cancer has taught Gary and me, its to live life while we have it, which seems like a no-brainer except sometimes we humans get so busy with the daily stuff that we forget the obvious.

Live on purpose. Live strong.

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Thursday, April 8, 2010

Cutting edge

We’re on the return leg of a triangular route that began in West Palm Beach yesterday afternoon, headed south to Miami last evening, and then across Alligator Alley to Tampa.

        Sari Asher Center  

We’ve only been a short time in Florida, and have already come to the conclusion that Floridians are gracious people.

We’re also impressed that the three cancer communities we visited are on the cutting edge of survivorship as they offer education, support and services that enable people to live well with and beyond cancer.

 

Palm Beach view from the Sari Asher Center

Tricia Tran and her team at the Sari Asher Center are located on the 8th floor  overlooking Palm Beach Island and the Atlantic Ocean beyond. (Personally, Id never get any work done with all the views.) Tricia spent a good deal of time helping map out their integrative cancer care center in an office the size of a broom closet while the facilities were being constructed.

Peggy Rios and her staff at the Miami Wellness Community have created inviting spaces in an office complex across from the University of Miami. Their “living room” is the heart of the multiuse building – tastefully decorated with warm furnishings that invite survivors and their caregivers in. One of the attendees at last evening’s event lost his wife to cancer on Monday. He brought his two young adult children to introduce them to the community of support that he and his wife had been privileged to be a part of.

Lizette Robles with the Moffitt Cancer Center took us on a tour of their comprehensive center—and we do mean comprehensive. Lizette gave up a career as a young news producer at a television station for the more personal, rewarding work at Moffitt.

Located on the University of Southern Florida campus, the support and services offered at Moffitt are amazing. They even have valet parking for their patients. We watched as more than a dozen USF students hustled back and forth parking and collecting cars so patients and caregivers could have curb-side service.

Moffitt Cancer Center      

Moffitt Cancer Center - USF campus

 

Following our presentation at Moffitt, we met Bob Samuels, the founding chairman of the National Prostate Cancer Coalition. He just happened to be at Moffitt as a patient. We struck up a conversation and exchanged business cards. In his work as a prostate cancer activist, Bob has rubbed elbows with the likes of General Norman Schwarzkopf, Bill Cosby and NFL Hall of Fame quarterback Len Dawson.

        

Waterside lunch in Tampa

Before leaving Tampa, Gary and I wandered along the River Walk, enjoying the warm sunshine and admiring the yachts. We stopped to have lunch at one of the waterfront restaurants blackened salmon with veggies and a chicken Caesar salad. Funny how food tastes better outdoors ... especially if theres a body of water nearby.

On the drive back to West Palm, I was thinking about all that is being offered in this cross-section of Florida cancer communities, as well as the good work being done by people like Bob Samuels on behalf of cancer survivors and their loved ones.

 

None of these centers or organizations would be around if not for the contribution of others – whether that shows up in daily, hands-on interaction with patients; through advocacy work; or through something as simple as parking cars.

It’s amazing what the power of thoughtful and compassionate service can do in helping ease the burden of cancer.

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Tuesday, April 6, 2010

Florida in April

If you spot an alligator your first day in Florida, then no matter what happens after that, it’ll be a great visit! Gary and I are at my brother and sis-in-law’s home, spending some time with my mom before we head out on a couple of mid-week speaking engagements.

    Alligator           

 West Palm Beach neighbors

Yesterday we took Mom to nearby Grassy Waters Preserve - very non-touristy and no entrance fee. My kind of place.

We strolled along the boardwalk through a cypress swamp where Gary captured a great blue heron and an alligator on camera. Gary tried to talk us into dangling our feet in the water so he could get some action shots, but my mom and I were on to him.

Temps were in the 70s when we woke up this morning. Gary worked out on my brother’s gym equipment and then went for a swim while Mom and I had a leisurely chat over bagels and hot tea. (Mom and I are on vacation; I’m not sure where my over-achieving husband thinks he is.) 

We’re now on Juno Beach near the beautiful aqua waters of the Atlantic. Gary’s never seen the Atlantic before. I’m thinking I need to get him out more.

We brought a picnic lunch, spread out our towels and rolled up our pant legs – our feet bare in the warm sand. As much as I love the snow—and I heard it snowed in our hometown on Easter Sunday—I’d have to admit we’re enjoying the balmy temperatures of Florida in April.

Juno Beach blog-writing opportunity

   
 

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Sunday, April 4, 2010

Easter blessings

We’re in heaven, and it looks a little like Jersey and Pennsylvania and New York. Gary and I arrived on the East Coast Wednesday evening, and we haven’t stopped since.

Bike-riding and playing at the park with the grandkids; burgers and sweet potato fries at Bobby Flay’s Burger Palace (yum!), and a day trip into the beautiful farmland that makes up Amish country.

 

Happy grandkids

 
       Central Park 10k

Yesterday, we made an early morning trek into the city to cheer on all four of our kids as they ran a 10K in Central Park. Our son, son-in-law and daughter-in-law all did cross country and/or track in high school, and our son-in-law ran in the New York Marathon last November.

And then there’s our daughter, the girl who has been known to call runners psycho as she passes them in her car.

 

 Pre-race photo op in Central Park

     

Call it peer pressure, or maybe just an opportunity to do something healthy but our daughter ran the furthest shes ever run in her life.

Spring is making her entrance to this part of the country. Temps have been in the high 60s/ low 70s, and Central Park is starting to bud in pinks and yellows and spring greens. Amazing metro beauty.

 

 At mile 5, the girl who used to call runners psycho

 
   
 

We attended church this morning as a family, celebrating the resurrection of our Lord Jesus Christ.

Theres a cool breeze blowing through the house even as we speak, but it doesnt vanquish the smell of an Easter ham and sweet potatoes baking in the oven. Our daughter-in-law made Easter cupcakes last night; our daughter just took brie out of the oven; and our oldest granddaughter is making roasted asparagus wrapped in prosciutto.

Earlier this afternoon the grandkids helped me cut up a fresh fruit salad. Two-year-old Lydia’s contribution was sampling strawberries and grapes: “More please,” as she stuffed fruit into her mouth.

It just doesn’t get much better than this.

You know what they say, though, about all good things coming to an end. Five days with children and grandchildren will end this evening in a lovely Easter feast. And I will enjoy the conversation and all the laughter, and I will relish the grandkid goodnight hugs and kisses ... because who knows when we’ll all be together next.

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