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reflection |
day in the life
Highlighting
the everyday life of a couple living well with a slow-growing cancer.
Life isn’t
always easy, and there will certainly be sorrows and losses
along the way. But being alive is good. It is very good.
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Friday, July 31, 2009
Heartsore
I’m having a heartsore moment. Not sure if heartsore is a word, but it
works for me. The kids and grands just walked out the door of
our Sunriver vacation rental and even though we’ll see them this
evening at a concert in Drake Park, I’m feeling the loss
already.
I just cleaned out the refrigerator, stuffing as much as
possible into our ice chest. (I haven’t figured out how I’m
going to lift it into the back of our vehicle yet.)
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I have a few minutes before I need to leave to meet Gary,
so thought I’d sit one last time on the back deck
under the tall trees and capture my thoughts on
computer. It’s cheap therapy. By journaling, I’ve
saved Gary thousands of dollars in therapy sessions.
Gary and I will grab some dinner and meet the kids
at Munch & Music this evening, and I will
try not to think about saying good-by. Meanwhile, I need to go
wrestle with a 100-lb ice chest. |

Lilly and
her grandpa
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The
Munch & Music crowd
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P.S. to my earlier random thoughts: Munch & Music was
great, despite the sudden thunder shower that passed
overhead. Friends joined us on our blanket in the
park and fun was had by all.
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J&S and grands stopped by the Cancer Center today
on their way to catch a red eye flight back to the
East Coast. My co-workers finally got to
meet the
"phantom grandchildren." My boss, Peggy Carey, says I always
talk about them and show photos, but they were never really sure
if I truly had grandchildren. Now they know!
Comment
Monday, July 27, 2009
In the moment
I’m sitting outdoors on the deck of a vacation rental home
in Sunriver, a cup of orange spice tea steaming in the cool air,
our oldest granddaughter bundled in a sweatshirt nearby and
reading a book. The baby is still asleep, which allows the
parents to sleep in a little, and our grandson is watching
cartoons in the living room.
What a luxury it is to sit here – no office to report to
and not a care in the world. If I put my mind to it, I could
find a couple of cares to worry about. But I am not letting any
worrisome thoughts anywhere near me on this day.
Sunriver is
about 12 miles south of our hometown. With family visiting for a
week and a tiny duplex, Gary and I searched online and found a
reasonable vacation rental. He and I settled into the cabin
Friday evening after work and our daughter and son-in-law and
the grands joined us on Saturday.
We barbecued
salmon and corn on the cob Saturday evening and our daughter
made barbecued pizza for dinner last night – yum!
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Lightweight cannonball
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Our grandson was diagnosed with strep throat, so he's been
lying low. The oldest granddaughter and I walked to
the pool where I spent a lazy afternoon counting
cannonballs made by the tiniest almost-3rd
grader you ever saw.
We have a family Yahtzee contest going (I have been beaten
soundly by the munchkins, but I'll have my |
revenge).
We’ve watched iCarly and Sponge Bob and the Next Food Network
Star. And the oldest granddaughter and I walked to Sunriver
Village for tea – Chai for me; bubble for her.
We’ve been cooking and eating and talking and laughing.
Lots of laughter – especially at the baby who shakes her booty
to music only she can hear!
Gary and I have to work the rest of the week, but we will
drive here in the evenings, and then back to reality early each
morning. And for this moment, I’m living in the present, feeling
so blessed with family and hope and the unexpected fun of a
vacation cabin nestled in the tall trees.
Comment
Friday, July 17, 2009
Extended
birthday present
You know
those obnoxious kids who are given a treat and make it last a
long time, much to the annoyance of their siblings who gobble
theirs down right away? I was one of those kids.
That
childhood skill, however, came in handy recently. As a birthday
gift, my thoughtful and considerate husband (did I mention
handsome?) arranged for an hour massage with a professional
massage therapist, who also happens to be a good friend. And I
came up with the brilliant idea of splitting it in two to make
it last longer.
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My birthday – a speed limit that you wouldn’t
find in town, and that’s all I’m saying – was this
past Sunday. Gary took me out to breakfast in the
morning ... and later in the afternoon, we drove up into the mountains with a
picnic lunch of fresh fruit, Turkey Reuben
sandwiches from Café Yumm and oatmeal raisin
cookies, which we ate as
we watched kayakers and canoeists slip past our
perch above Sparks Lake. |
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South Sister partially obscured by clouds
across from Sparks Lake |
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It was the
perfect birthday – Gary even watched an old classic movie with
me later in the evening. And the second half of my birthday gift
is still coming up! Thanks, hon … you’re the best!
And thanks,
JoJo of Zao Massage Therapy (Zao means, “To live, breathe, be
among the living” … but it’s all Greek to me).
Comment
Saturday, July 11, 2009
River traffic
We just spent
the better part of the day with a group of survivors and
caregivers. About 34 of us launched kayaks and canoes from the
Sunriver Marina and floated lazily down the Deschutes River.
Mt.
Bachelor shows above the tree tops lining the Deschutes River
The plan
included a potluck barbecue afterward. I sat in the shade and
chatted with a fellow caregiver, Mary, as we watched the
activity – a couple of yard games in full swing, turkey burgers
being grilled, people chatting around the patio table, the
entire scene infused with laughter.
Mary leaned
over and said, “It’s hard to tell who has cancer and who
doesn’t.”
Which is
precisely why we like hanging with this group, made up of
DEFEAT Cancer
attendees. Not because it’s my job to be there; not because we
have nothing better to do; but because it’s always encouraging
to be around people that are living well with cancer. And we are
certainly blessed with an extraordinary group of cancer
community friends that is doing just that.
Comment
Thursday, July 9, 2009
Munch &
Music
They say
there are 2-3 events almost every weekend in our hometown of
Bend, Oregon. I think it’s to keep the tourists entertained
(although I don’t see how they could have time for art festivals
or concerts or quilt shows when there are so many mountains and
trails and lakes).
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Drake Park entertainers |
As if weekend events aren’t enough, Bend also hosts
Munch & Music on Thursday evenings in July and
August. Bring your own blanket and dinner—or buy
something to eat from any one of the local
vendors—and enjoy a free concert.
We got home from work a couple hours ago, ate dinner
at home, and then walked down toward the river among
the concert-goers
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catching some music, snapping
some photos, stopping to watch the jugglers. |
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I
love being outdoors, and if there isn’t enough time
to hike mountain trails on a Thursday evening after
work, we can at least meander through Drake Park,
people-watching and swan-watching.
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Swans
on Mirror Pond in Drake Park |
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Sunday, July 5, 2009
Dealing
with the paparazzi
I’ve lugged
our laptop in my backpack and am sitting in a little meadow
overlooking Mt. Bachelor across
Todd Lake. I can hear the shutter clicks of the paparazzi
hovering nearby – no, wait … that’s Gary with his camera.
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Todd Lake is one of our favorite easy hikes because it has
everything – mountain views, forested trails that
stay within sight of the lake, wildflowers and, in
the winter, snowshoe access from Mt. Bachelor. A
little brook is babbling past my feet and I’m
planning where to build our log cabin should the
Forest Service change their minds and decide to
issue a permit. |
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Just
another day at the office in Central Oregon |
We attended a
4th of July BBQ yesterday in honor of a couple that
got married on July 3 in a small family gathering. The groom,
Al Huntley, is founder of
Wendy’s Wish in honor of his first wife who died of colon
cancer; the bride, Marcia, is a lovely 2nd grade
teacher – the kind of person you like immediately. We wish them
more happiness than they can contain.
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Al barbecued enough salmon, chicken breasts and flank steaks
to feed an army, and guests furnished salads, side
dishes and homemade ice cream to top Al’s signature
rhubarb cobbler.
After I took Gary around to introduce him to the few
people I knew—I work with the Wendy’s Wish committee
as part of my job—we settled ourselves with our
dinner plates on a low stone wall and day-dreamed
about what we wanted to do if we could retire and if
finances weren’t an issue.
I
told Gary that the problem is I want to do too many
things: present our survivorship/quality of life
message in cancer centers, conferences, and
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Al & Marcia Huntley |
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college
and high school
classes
full-time; teach a nutritional cooking course at Gilda’s Club in
Manhattan; write more books; settle into a mountain-view
lodge with access to trails and room for lots of guests
interested in learning more about a healthier lifestyle – a
cancer retreat center, of sorts.
Bottom line is, God has it all figured out and has already made
provision. And our hearts are quietly at rest as we wait for
open doors – whether that’s in an RV on the road, an apartment
in Manhattan, or a country lodge with views much like what I’m
seeing at the moment as I deal with the paparazzi.
Comment
Saturday, July 4, 2009
Midnight
cruise
For our anniversary, our daughter and son-in-law gave us a gift
certificate for a midnight canoe trip. We waited until the local
weather warmed up, and booked with Wanderlust Tours for last
night. Of the eleven moonlight adventurers, Gary and I were the
only locals (lucky us … I think the tourists were jealous).
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We canoed on Hosmer Lake with an almost full
moon lighting the way. Hosmer is divided into two
small lakes connected by a channel that winds
through tall reeds and past the homes of beavers and
waterfowl. As we quietly paddled, each bend in the
channel brought amazing views of South Sister,
Broken Top and Mt. Bachelor. |
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Mt.
Bachelor at dusk |
When we reached the second lake, Jeff the tour guide, instructed
us to parallel
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park, holding on to each other’s canoes to make one
large floating machine. He
distributed hot chocolate and treats from Sparrow
Bakery while pointing out several constellations and
entertaining us with stories from Greek mythology.
We saw several shooting stars – meteorites, actually
– one in particular that burned large and trailed
long through the sky.
Happy birthday, America – you wonderful,
big-hearted, free country … and what better way to
bring in your birthday than on a moonlit mountain
lake!
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The
moon reflected in Hosmer Lk
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Friday, July 3, 2009
Behind red
doors
I mentioned
Gilda’s Club as one of the places we visited last week to
discuss our survivorship message for possible use in their
line-up of programs.
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Gilda’s Club is named in honor of Saturday Night
Live comedienne Gilda Radner, who was so
appreciative of the emotional and social support she
received while dealing with cancer that she
envisioned a warm and welcoming community for cancer
survivors – men, women, teens and children. Gilda
died in 1989 and in 1995, the flagship clubhouse at
195 West Houston Street in Manhattan opened its red
door ... and I do mean red! |
Rhonda was our hostess for the meeting and gave us a tour through
the bottom two floors of the lovely, old building behind its
large mullioned bay window. The rooms are tastefully decorated
and comfortably
furnished. The cozy lending library boasts of computers, and
a kitchen has been renovated with stainless steel appliances and
beautiful wood cabinets. There are large living room spaces …
and smaller spaces where doors can be closed for privacy, the
overstuffed chairs inviting long periods of day-dreaming.
The
clubhouse is staffed with professionals who are trained in
supporting cancer survivors and their families. Volunteers
facilitate knitting and exercise classes, and art and writing
workshops. I found myself for a moment wishing I lived in NYC
just so I could volunteer to lead a weekly class or workshop.
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Which brings me to a brilliant idea that flashed
through my brain today – what if, instead of just
presenting our tag-team message when we return in
the fall, we also do a nutritional cooking demo?
I’ve always thought that if you get someone to slice
and dice and taste nutritional foods, they're much
more
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Gilda's Club Manhattan flagship |
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likely to change their eating habits than if you
simply hand them a healthy recipe.
We could
pre-purchase the ingredients, show up a little early to get
things organized, and then pretend to be Food Network
personalities, talking about all the components for healthy
survivorship as we get the audience involved in stirring and
tasting. How much fun would that be?!
I can’t wait
to e-mail Rhonda first thing Monday morning!
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June 2009
Happy kind of exhausted
4:30am blog
Fat checkmarks
One of the benefits of cancer
Calm before the storm
Big picture thinking
May 2009
Back to the real world
Quick trip to the EC
Audacious living
Connecticut adventure
April 2009
Flat Stanley in Ory-gun
Baby steps
Four-day weekend
Soaring on wings
Sunbathing
C.O. style
Real men wear pink
Fun in the CTC
March 2009
Live like you were dying
Day jobs
Connected
CAN Cancer
The power of one
February 2009
It's official
Fun with the medical professionals
To my valentine
Moments in Jersey
January 2009
Leaving on a
jet plane
Scans ordered
Welcome to life
Insane residents
Back in high school
Engaged crowd
Out of the mouths of babes
Divine intervention
December 2008
Christmas
via webcam
A merry little
Christmas
Somewhere on purpose
Adventure and
romance
Celebrate life
Imagine
Men and menopause
November 2008
My Thanksgiving list
Thanksgiving
Eve
Roundabouts
How Starbucks
saved my life
Training for
Switzerland
Radio interview
Super colon
Thoughts on
being invisible
The speed of a turtle
October 2008
Obligation of
the cured
Cancer Adventures – the book
Blue and orange town
Hope Couture
First snow
Simple
pleasures are the best
128 quilts
September 2008
Whale watching
and kite flying
The new and relaxed Gary
The scenic
route
Packing the essentials
One step at a
time
PSA count celebration
August 2008
Frost in August
Reading list
Soaring Spirits
Checking in
9:30am rock band
Lingering
July 2008
Grand for a reason
Mickey Mouse
pancakes
Survivorship is all the rage
Follow your dreams
Birthday weekend
Only in America
Unrelated goose incident
June 2008
Geese
Road trip
Friday night date
Tough day on the job
Best dad
Confession
Light bulb moment
Homesick
Amazing volunteers
May
2008
Countdown
Extended family
Testing the limits
Trailblazers
The last lecture
Mother’s Day thoughts
Welcome to our world, Lydia
Personal touch
April 2008
Dispensing goodness
Cancer community – Part II
Cancer community
Barn
door analogies
Homemade soup day
Mice and tumors
Waiting room magazines
Weekend date
First entry
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