home

journey with purpose

about us

our story | our cancer team

cancer blog

a day in the life

mission statement

board of directors

speaking schedule

contact us | availability

look inside the book

inspiring survivor stories

central oregon trails

hiking and snowshoeing

for your health

nutritious recipes

get involved

donate now

resources

cancer web sites

 
 
 

a day in the life

The purpose of this blog is to highlight the everyday life of a family going through cancer. We're aware that every diagnosis carries a different challenge and that we can only share our perspective on what it's like to live with a slow-growing cancer that has metastasized. Our hope is that you'll come back to visit often!


 

Friday, July 31, 2009

Heartsore

I’m having a heartsore moment (writing this on Thurs, July 30). I’m not sure if heartsore is a real word, but it works for me. The kids and grands just walked out the door of our Sunriver vacation rental and even though we’ll see them this evening at a concert in Drake Park, I’m feeling the loss already.

 

I just cleaned out the refrigerator, stuffing as much as possible into our ice chest. (I haven’t figured out how I’m going to lift it into the back of our vehicle, though.)

 

I have a few minutes before I need to leave to meet Gary, so thought I’d sit one last time on the back deck under the tall trees and capture my thoughts on computer. It’s cheap therapy. By journaling, I’ve saved Gary thousands of dollars in therapy sessions.

 

Gary and I will grab some dinner and meet the kids at Munch & Music this evening,

      

Lilly and Grandpa

 

and I will try not to think about saying good-by. Meanwhile, I need to go wrestle with a 100-lb ice chest.

 

        

P.S. to my earlier random thoughts: Munch & Music was great, despite the sudden thunder shower that passed overhead. Friends joined us on our blanket in the park and fun was had by all.

 

J&S and grands stopped by the Cancer Treatment Center today on their way to catch a red eye flight back to the East Coast. My co-workers finally got to

 

The Munch & Music crowd

meet the "phantom grandchildren." My boss, Peggy Carey, says I always talk about them and show photos, but they were never really sure if I truly had grandchildren. Now they know!

 

Comment

 


 

Monday, July 27, 2009

In the moment

I’m sitting outdoors on the deck of a vacation rental home in Sunriver, a cup of orange spice tea steaming in the cool air, our oldest granddaughter bundled in a sweatshirt nearby and reading a book. The baby is still asleep, which allows the parents to sleep in a little, and our grandson is watching cartoons in the living room.

 

What a luxury it is to sit here – no office to report to and not a care in the world. If I put my mind to it, I could find a couple of cares to worry about. But I am not letting any worrisome thoughts anywhere near me on this day.

 

Sunriver is about 12 miles south of our hometown. With family visiting for a week and a tiny duplex, Gary and I searched online and found a reasonable vacation rental. He and I settled into the cabin Friday evening after work and our daughter and son-in-law and the grands joined us on Saturday.

 

We barbecued salmon and corn on the cob Saturday evening and our daughter made barbecued pizza for dinner last night – yum!

 

     

Lightweight cannonball   

Our grandson was diagnosed with strep throat, so he's been lying low. The oldest granddaughter and I walked to the pool where I spent a lazy afternoon counting cannonballs made by the tiniest almost-3rd grader you ever saw.

 

We have a family Yahtzee contest going (I have been beaten soundly by the munchkins, but I'll  have my

revenge). We’ve watched iCarly and Sponge Bob and the Next Food Network Star. And the oldest granddaughter and I walked to Sunriver Village for tea –  Chai for me; bubble for her.

 

We’ve been cooking and eating and talking and laughing. Lots of laughter – especially at the baby who shakes her booty to music only she can hear!

 

Gary and I have to work the rest of the week, but we will drive here in the evenings, and then back to reality early each morning. And for this moment, I’m living in the present, feeling so blessed with family and hope and the unexpected fun of a vacation cabin nestled in the tall trees.

 

Comment

 


 

Friday, July 17, 2009

Extended birthday present

You know those obnoxious kids who are given a treat and make it last a long time, much to the annoyance of their siblings who gobble theirs down right away? I was one of those kids.

 

That childhood skill, however, came in handy recently. As a birthday gift, my thoughtful and considerate husband (did I mention handsome?) arranged for an hour massage with a professional massage therapist, who also happens to be a good friend. And I came up with the brilliant idea of splitting it in two to make it last longer.

 

My birthday – a speed limit that you wouldn’t find in town, and that’s all I’m saying – was this past Sunday. Gary took me out to breakfast in the morning ... and later in the afternoon, we drove up into the mountains with a picnic lunch of fresh fruit, Turkey Reuben sandwiches from Café Yumm and oatmeal raisin cookies, which we ate as we watched kayakers and canoeists slip past our perch above Sparks Lake.

Sparks Lake      

South Sister partially obscured by clouds

across from Sparks Lake

 

 

It was the perfect birthday – Gary even watched an old classic movie with me later in the evening. And the second half of my birthday gift is still coming up! Thanks, hon … you’re the best!

 

And thanks, JoJo of Zao Massage Therapy (Zao means, “To live, breathe, be among the living” … but it’s all Greek to me).

 

Comment

 


 

Saturday, July 11, 2009

River traffic

We just spent the better part of the day with a group of survivors and caregivers. About 34 of us launched kayaks and canoes from the Sunriver Marina and floated lazily down the Deschutes River.

 

     Defeat Cancer       

Mt. Bachelor shows above the tree tops lining the Deschutes River

 

The plan included a potluck barbecue afterward. I sat in the shade and chatted with a fellow caregiver, Mary, as we watched the activity – a couple of yard games in full swing, turkey burgers being grilled, people chatting around the patio table, the entire scene infused with laughter.

 

Mary leaned over and said, “It’s hard to tell who has cancer and who doesn’t.”

 

Which is precisely why we like hanging with this group, made up of DEFEAT Cancer attendees. Not because it’s my job to be there; not because we have nothing better to do; but because it’s always encouraging to be around people that are living well with cancer. And we are certainly blessed with an extraordinary group of cancer community friends that is doing just that.

 

Comment

 


 

Thursday, July 9, 2009

Munch & Music

They say there are 2-3 events almost every weekend in our hometown of Bend, Oregon. I think it’s to keep the tourists entertained (although I don’t see how they could have time for art festivals or concerts or quilt shows when there are so many mountains and trails and lakes).

 

        

Drake Park entertainers

As if weekend events aren’t enough, Bend also hosts Munch & Music on Thursday evenings in July and August. Bring your own blanket and dinner—or buy something to eat from any one of the local vendors—and enjoy a free concert. 

 

We got home from work a couple hours ago, ate dinner at home, and then walked down toward the river among the concert-goers  – catching some music, snapping some photos, stopping to watch the jugglers.

 

 

I love being outdoors, and if there isn’t enough time to hike mountain trails on a Thursday evening after work, we can at least meander through Drake Park, people-watching and swan-watching.

 

Comment

 

 

     

Swans on Mirror Pond in Drake Park

 

 


 

Sunday, July 5, 2009

Dealing with the paparazzi

I’ve lugged our laptop in my backpack and am sitting in a little meadow overlooking Mt. Bachelor across Todd Lake. I can hear the shutter clicks of the paparazzi hovering nearby – no, wait … that’s Gary with his camera.

 

      Todd Lake  

Todd Lake is one of our favorite easy hikes because it has everything – mountain views, forested trails that stay within sight of the lake, wildflowers and, in the winter, snowshoe access from Mt. Bachelor. A little brook is babbling past my feet and I’m planning where to build our log cabin should the Forest Service change their minds and decide to issue a permit.

 

Just another day at the office in Central Oregon

 

We attended a 4th of July BBQ yesterday in honor of a couple that got married on July 3 in a small family gathering. The groom, Al Huntley, is founder of Wendy’s Wish in honor of his first wife who died of colon cancer; the bride, Marcia, is a lovely 2nd grade teacher – the kind of person you like immediately. We wish them more happiness than they can contain.

 

Al barbecued enough salmon, chicken breasts and flank steaks to feed an army, and guests furnished salads, side dishes and homemade ice cream to top Al’s signature rhubarb cobbler.

 

After I took Gary around to introduce him to the few people I knew—I work with the Wendy’s Wish committee as part of my job—we settled ourselves with our dinner plates on a low stone wall and day-dreamed about what we wanted to do if we could retire and if finances weren’t an issue.

 

I told Gary that the problem is I want to do too many things: present our survivorship/quality of life message in cancer centers, conferences, and

  

Al & Marcia Huntley

    
 

college and high school classes full-time; teach a nutritional cooking course at Gilda’s Club in Manhattan; write more books; settle into a mountain-view lodge with access to trails and room for lots of guests interested in learning more about a healthier lifestyle – a cancer retreat center, of sorts.

 

Bottom line is, God has it all figured out and has already made provision. And our hearts are quietly at rest as we wait for open doors – whether that’s in an RV on the road, an apartment in Manhattan, or a country lodge with views much like what I’m seeing at the moment as I deal with the paparazzi.

 

Comment

 


 

Saturday, July 4, 2009

Midnight cruise

For our anniversary, our daughter and son-in-law gave us a gift certificate for a midnight canoe trip. We waited until the local weather warmed up, and booked with Wanderlust Tours for last night. Of the eleven moonlight adventurers, Gary and I were the only locals (lucky us … I think the tourists were jealous).

 

        

We canoed on Hosmer Lake with an almost full moon lighting the way. Hosmer is divided into two small lakes connected by a channel that winds through tall reeds and past the homes of beavers and waterfowl. As we quietly paddled, each bend in the channel brought amazing views of South Sister, Broken Top and Mt. Bachelor.

 

Mt. Bachelor at dusk

 

When we reached the second lake, Jeff the tour guide, instructed us to parallel

park, holding on to each other’s canoes to make one large floating machine. He

distributed hot chocolate and treats from Sparrow Bakery while pointing out several constellations and entertaining us with stories from Greek mythology.  

 

We saw several shooting stars – meteorites, actually – one in particular that burned large and trailed long through the sky.

 

Happy birthday, America – you wonderful, big-hearted, free country … and what better way to bring in your birthday than on a moonlit mountain lake!

 

Comment

Hosmer Lake

The moon reflected in Hosmer Lk 

   

 


 

Friday, July 3, 2009

Behind red doors

I mentioned Gilda’s Club as one of the places we visited last week to discuss our survivorship message for possible use in their line-up of programs.

 

        

Gilda’s Club is named in honor of Saturday Night Live comedienne Gilda Radner, who was so appreciative of the emotional and social support she received while dealing with cancer that she envisioned a warm and welcoming community for cancer survivors – men, women, teens and children. Gilda died in 1989 and in 1995, the flagship clubhouse at 195 West Houston Street in Manhattan opened its red door ... and I do mean red!

 

Rhonda was our hostess for the meeting and gave us a tour through the bottom two floors of the lovely, old building behind its large mullioned bay window. The rooms are tastefully decorated and comfortably furnished. The cozy lending library boasts of computers, and a kitchen has been renovated with stainless steel appliances and beautiful wood cabinets. There are large living room spaces … and smaller spaces where doors can be closed for privacy, the overstuffed chairs inviting long periods of day-dreaming.

 

The clubhouse is staffed with professionals who are trained in supporting cancer survivors and their families. Volunteers facilitate knitting and exercise classes, and art and writing workshops. I found myself for a moment wishing I lived in NYC just so I could volunteer to lead a weekly class or workshop.

 

Which brings me to a brilliant idea that flashed through my brain today – what if, instead of just presenting our tag-team message when we return in the fall, we also do a nutritional cooking demo? I’ve always thought that if you get someone to slice and dice and taste nutritional foods, they're much more

Gilda's Club      

Gilda's Club Manhattan flagship

 

likely to change their eating habits than if you simply hand them a healthy recipe.

 

We could pre-purchase the ingredients, show up a little early to get things organized, and then pretend to be Food Network personalities, talking about all the components for healthy survivorship as we get the audience involved in stirring and tasting. How much fun would that be?!

 

I can’t wait to e-mail Rhonda first thing Monday morning!

 

Comment