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a day in the life

The purpose of this blog is to highlight the everyday life of a family going through cancer. We're aware that every diagnosis carries a different challenge and that we can only share our perspective on what it's like to live with a slow-growing cancer that has metastasized. Our hope is that you'll come back to visit often!


 

Wednesday, March 31, 2010

Heading east

It’s 5:13am. Gary and I are sitting in a Central Oregon airport bound for Philly … and grandchildren! You don’t even want to know what time Gary rolled me out of bed this morning.

We have 5 glorious days ahead with kids and grands … and then 5 days in Florida with three speaking opportunities – a cancer center in West Palm Beach, The Wellness Community in Miami, and the Moffitt Cancer Center in Tampa.

      

Leaving on a jet plane

 

We’ll base out of my brother’s home in West Palm for the week. He says the temps are in the 70s and the humidity has set in. This does not compute. My smart phone tells me it’s 25 degrees here with no humidity anywhere in sight – just beautiful white snow on the nearby mountains. I think I’m in for a rude awakening.

Speaking of awakening – signing off for a short snooze before they begin boarding.

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Sunday, March 28, 2010

March Madness

Gary, my computer geek husband, comes up with the idea for a little friendly family competition. Which means we’re in the middle of March Madness and the stakes are high – a large candy bar and trophy presented to the winner at the annual Johnson family reunion in May.

You choose one team from each of the 16 seeds. The higher ranked team your team beats, the more points you score.

So, at the end of the Elite Eight weekend, with four teams headed into the Final Four, my sister-in-law, Wendy, is in first place with 217 points and I’m trailing in second with 194 points. I’m so far behind that West Virginia needs to sweep everything for me to win the coveted prize.

Go, West Virginia Mountaineers!

     

Before WVU’s big win yesterday, Gary’s brother e-mailed: “Wendy said to tell you she expects a HUGE candy bar,” to which I replied, “Don’t count your candy bars before they hatch!” (The nerve of some people.)

This is the sister-in-law who has started all the water fights at the family reunion, who loves competition and loves to win. I’m thinking if I show up at this year’s reunion as the winner of the Johnson Family March Madness Pool, I'd better be wearing rain gear.  

Go, Mountaineers!

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Friday, March 26, 2010

Welcome to spring

I just popped a pan of Pumpkin Cornbread into the oven (think soft gingerbread with a touch of crunchy cornmeal). The smell of molasses and cinnamon baking puts me in mind for the winter holidays. Of course, it helps that snow is falling and the fireplace is blazing.

     

Pumpkin cornbread with molasses & cinnamon

Welcome to spring in Central Oregon. A couple years ago we hosted a barbecue and Easter egg hunt in our backyard with temps in the low 70s … and then woke up the next morning to 3-4 inches of snow.

Which is one of the things I love about living at the base of the towering Cascades – you just never know what the weather will bring and since Gary and I are up for adventure, today’s snow flurries suit us just fine.

Someone in a neon green jacket with black tights just rode by on his bicycle. Another thing I love about Central Oregon – the die-hard outdoor enthusiasts. Snow?  Phssw … I can still ride my bike to work. Watch me.

So on this spring morning my day off were enjoying pumpkin cornbread and hot tea for breakfast, snow falling, fireplace light, and writing projects. It just doesn’t get much better than this!

Side note: Speaking of breakfast, Gary, my knight in shining armor, braved the blizzard to fill the birdfeeder on this frosty morning. The things you do for me! I beamed as he came back indoors.

To which he replied with a straight face: No one ever said I was smart.

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      Tumalo Feed Company  

Monday, March 22, 2010

Half birthdays

Occasionally Gary tries to re-write the rules. And occasionally I let him. Take, for instance, his “Eat whatever I want on my birthday” rule that he made up a couple years ago (as if what I’m feeding him isn’t nutritious and delicious).

And then there’s the rule he made up to go with the first rule: “Every half birthday I get to eat whatever I want.” I indulge him in this new rule, as well. Sigh.

So, with Gary’s half birthday today, we celebrated on Friday at a local steak house of his choice – the Tumalo Feed Company.

 

Cowboy Gary with Cowboy Bob

The Tumalo Feed Company, just a few miles north of Bend, was featured in Sunset Magazine as one of the 11 “Top Steak Houses of the Great West.” Well deserved. The décor is warm and inviting and definitely cowboy-ish. Our friendly waitress was wearing a short denim skirt and cowboy boots, and Dale Evans and Roy Rogers were crooning on the overhead speakers.

Gary orders a juicy steak that comes with a salad, onion rings, country potatoes, beans and garlic bread. Being the self-disciplined girl that I am, I order a salad and the trout with asparagus, although I may have helped Gary polish off the onion rings and garlic bread.

We ask for a take-out box because we’re saving room for dessert. After all, what good does an “Eat whatever I want” rule do if you can’t order dessert? 

Being the self-disciplined girl, I order Marionberry Cobbler, topped with vanilla ice cream (minor detail) while Gary gets a piece of Chocolate Thunder Cake that is so rich it takes him three days to finish it off. (Either that, or he was flaunting his chocolate cake in front of me all weekend.)

Tumalo Feed Company  

Tumalo Feed Company

   
 

If you visit the Tumalo Feed Company Web site, you’ll learn a little history about the place and its owners, John Bushnell and Robert Holley. Apparently they met while working in a popular steak house in Northern California and then later Bushnell recruited Holley to work as manager of a well-known California restaurant. “Robert was the only available restaurant manager in town at that time,” says Bushnell.

“It was a town of seven, and the other six were in jail,” recalls Holley.

You see why its a fun place to eat.

Back to rule making: One of the rules is not to let the guy make up too many because then he thinks he’s the official rule-maker. A girl has to draw the line somewhere. Earlier last week, Gary asks what I’m getting him for his half birthday.

Half birthday presents? I don’t think so. Right there – that’s where you draw the line.

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Friday, March 19, 2010

Destinations

Our original destination this morning may have been the little meadow at the base of Three Fingered Jack, but the true destination was getting outdoors and participating in life.

With shorter work hours that usually mean Fridays off, we awoke to blue skies and sunshine. The webcam on Santiam Pass showed clear roads with a bit of snow along the sides, so we took the chance that the road up to the Jack Lake trailhead was open … and that there wouldn’t be too much snow on the trail.

        

It’s about 12 miles from the highway to the trailhead. We made it to mile 11 before our little 4-wheel drive vehicle couldn’t maneuver the snow-covered uphill road.

No worries. Wed just hike the rest of the way to Jack Lake, and then see how far up the trail we could get. We were layered for brisk weather with plenty of water and snacks.

 

Three Fingered Jack straight ahead

The skies were clear and deep. We heard sounds of a woodpecker working his way through a tree, and stopped a couple times to peer at wildlife tracks and decipher what activity had taken place there in the night.

And all the while, we snapped away at glorious mountain views – Middle Sister, North Sister, and Mt. Washington to our left; Jefferson to our right; Three Fingered Jack straight ahead.

The further we hiked, though, the deeper the snow. Because we weren’t outfitted with snowshoes, we eventually had to turn back.

      

North and Middle Sisters

 

So even though we set out to reach Canyon Creek Meadows at the base of Three Fingered Jack, if the idea was to get outdoors and enjoy each others company and the physical activity, then I would have to say that we reached our destination today.

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Tuesday, March 16, 2010

Most romantic bridge in the world

One of the things Gary and I talk about in our cancer survivorship presentation is the importance of having an attainable goal (or two or three), determine the first steps and then work in the direction of your dreams.

We figured we probably ought to practice what we preach ... so, with our dream of hiking the Swiss Alps in mind, we set up a fun savings account, Gary applied for a passport and I got mine renewed. And now – a year or so later with a few detours along the way – we have enough saved.

     

Swiss Alps hiking goal

I love it when other people believe in your dreams. Our daughter and son-in-law sent us a couple of books—one entitled Switzerland’s Mountain Inns: A Walking Vacation in a World Apart. And recently we got email from a doctor in our community who completed a 35 stage, 42 night trek across Switzerland. I spent some time browsing through the links he sent and checking out his recommended reading list – a wealth of information.

A guy we met this past weekend who hiked in the French Alps had some good tips, and a nursing student at one of our presentations wrote down the names of three must-see places in Switzerland with good hiking trails.

So now that we have a cheerleading squad, we figure we’d better not let anyone down. We are shooting for the last week in August and the first week in September, after the European vacationing crowds have returned to their respective cities.    

The Kapellbrücke in Lucerne, at right, has been called the most romantic bridge in the world. I’ve visited on a couple different occasions, but what good does it do to cross the most romantic bridge in the world without your sweetie?

So, in addition to venturing out on some alpine hiking trails, guess where I plan to take Gary!

      

Kapellbrücke in Lucerne most romantic bridge

 

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Friday, March 12, 2010

Stellar team

Gary drags me out of bed early this morning – my day off, I might add – to attend Grand Rounds at the hospital. The guest speaker is Dr. Tomasz Beer, Professor of Medicine at Oregon Health and Science University (OHSU) and Director of its Prostate Cancer Research Program.

We first met Dr. Beer (pronounced “bear”) in September 2009 at an OHSU prostate cancer conference where we were on the agenda as presenters. I blogged afterward about how we immediately liked him—“I was struck with the thought that we are ordinary people stepping outside our comfort zones into the presence of greatness.”

      Dr. Tomasz Beer  

So this morning, we asked His Greatness how much he would charge if we could have our photo taken with him.

Apparently hes never considered charging for photo sessions, but the thought struck him that it might be a great way to raise funds for prostate cancer research.

(I’m pretty sure he’ll be looking into that further.)

 

Dr. Tomasz Beer The Great (at left)

Gary is a radar-screen patient of Dr. Beer’s, which means he gets his hormonal therapy treatment locally and sees Dr. Beer once a year to stay on his radar screen – a really great place to be since Dr. Beer is on a mission to find a cure for prostate cancer.

So there you have it, part of our stellar medical team. Personable, brilliant … and vigilant when it comes to cancer.  

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Saturday, March 6, 2010

Talent

Central Oregon’s got talent! Our date last night was at the Tower Theater in downtown Bend for the annual St. Charles Medical Center Talent Showcase. Gary and I clapped and hooted for fellow employees along with the rest of the boisterous crowd.

The highlight of the evening was the Cancer Treatment Centers very own Dr. Bleyer playing “Rhapsody in Blue” on the piano. His dog, Cookie, was supposed to accompany him, but Cookie was too busy sniffing under the piano to watch for his cue.

 Tower Theater

Bend’s historic Tower Theater

Today, with temps soaring into the 40s, we hiked up to Misery Ridge at Smith Rock and ate our lunch in the glorious sunshine, entertained by the talented rock climbers making their way up Monkey Face.

When it comes to rock climbing, talent isn’t optional; it’s a matter of life or death.

 Smith Rock    Monkey Face  

Eating lunch, easily entertained by the rock climbers on Monkey Face

In case you’re wondering where our talents and abilities lie – I’m quite gifted when it comes to discerning a good cup of Chai tea and Gary has become an amazing amateur photographer … only sometimes it feels as if paparazzi are following me around. A girl can’t even take a bite to eat without the photographer clicking away. Nothing is sacred.

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Tuesday, March 2, 2010

Upgrading into the 21st century

So, Gary and I finally joined the 21st century this week. By upgrading our existing cell phone plan to include wireless connection, discontinuing our landline Internet service and taking advantage of my hospital employee discount—an advantage I had not taken heretofore, and one that follows me the rest of my life—we now have phones that are smarter than we are.

As for smart phone applications, don’t get me started. Did you know there’s a coin toss app? This will come in handy the next time I’m asked to referee a football game and forget my coin.

     

Don't you hate it when your phone

is smarter than you are?!

And then there’s “Steamy Window” – an application that covers the entire phone screen with steam that you wipe off with your fingers. (Why you would want to do this, I don’t know.) Or “ColorFlashlight” that allows you to find your way in a theater or dance to a strobe light.

Here’s one that might be good to install now while I’m thinking of it – “Find My Phone.” It sends a message to ring your phone loudly, even if it’s in silent mode.

 

Of course, my all-time favorite is the “Find Starbucks” application. Self-explanatory. I just now clicked on “Show all stores” and there are 9 in our hometown of Bend. What a country!

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